Case Summary  |  E.D.S

I was born with E.D.S, i was officially diagnosed in 2000 at the mayo clinic in Rochester mn where we learned that surgery is NOT recommended for EDS patients, unfortunately this was discovered after i had already had knee surgery. I have tried many different treatments but there is very little knowledge about EDS, it was recommended that i follow up in 4-5 yrs because of all the medical advancements taking place, maybe they would know more about it then (but i have never gone back in to the mayo clinic) I continued doctoring in my home town where drs prescribed a fair amount of different meds to try all along the lines of pain meds or anti inflammatory, as well as physical therapy for whatever joint/area was giving me trouble at the time; knee, shoulder, hip....
i currently have no ins, but thankfully i haven't had any reason to go to the dr for it yet. i have a really understanding boss who knows im a "freak" so some days im almost babied, she will tell me to go home on some of my....almost bad days.... (still not so bad that i cant get out of bed)
one day if i ever have ins again, maybe ill go back to the mayo clinic and see if they have come up with any new information/ treatment regarding EDS.

self diagnosing i thought maybe losing 10 lbs would be easier on my joints.